• Survey Results

    The narcolepsy patient community prepares to share life impacts & treatment perspectives with FDA Regulators on Sept. 24, 2013. Read Interim Results here. … [Find Out More]

    Survey Results
  • Meeting Agenda

    View the agenda for the FDA Narcolepsy Public Meeting on Patient-Focused Drug Development, taking place on Sept. 24, 2013 at FDA's Campus in Silver Spring, Maryland. Learn more here. … [Find Out More]

    Meeting Agenda
  • Get Involved

    Narcolepsy affects every person differently, so we need many voices to capture our community’s full experience. This is a unique opportunity for people with narcolepsy and those who love them to help shape the future of narcolepsy treatment. Learn more about how you can participate! … [Find Out More]

    Get Involved
  • Community Voices

    We’re rallying people across the narcolepsy community to share their experiences about what it’s like to live with narcolepsy with FDA decision-makers who are listening. Hear from some of your fellow community members on our “Voices” blog. … [Find Out More]

    Community Voices

FDA Narcolepsy Meeting to be Held on Sept 24, 2013

FDA logoThe Food and Drug Administration will hold a narcolepsy meeting on Sept 24, 2013 as part of the Patient-Focused Drug Development Initiative (PFDDI). Narcolepsy is one of 20 conditions to be addressed in this five-year initiative. FDA aims to gain patients' perspectives on the impact of narcolepsy on daily life as well as the adequacy of available therapies. You can help shape the future of narcolepsy treatment!