Unite Narcolepsy Wrap Up

First slideThe recording of the final webinar in our Unite Narcolepsy series is now available for on-demand viewing.

Date Recorded: Thursday, Oct. 10 at 2 p.m. (Eastern)

Speakers: Monica Gow, Julie Flygare & Kim McCleary

Description: The FDA’s patient-focused meeting on narcolepsy held Sept. 24 was a great success by all measures. We recap what happened at the event, review ways that patients and other stakeholders can offer their perspective to the agency, and look ahead at ways to sustain the positive momentum.

Watch recording: http://www.youtube.com/watch?v=PcTPe83NSR8

Here are links to resources mentioned to during the webinar:

Instructions for submitting your perspective to the FDA’s docket (in writing or by video): http://www.unitenarcolepsy.org/fdas-questions-narcolepsy-community/

Complete the patient-focused narcolepsy survey: https://www.surveymonkey.com/s/unitenarcolepsy

View the archived recording of the 4-hour FDA meeting: http://www.unitenarcolepsy.org/fda-meeting-video-now-available/

Read Unite Narcolepsy’s report on the FDA meeting: http://www.unitenarcolepsy.org/fda-hears-narcolepsy-realities/

Read the first of FDA’s “Voice of the Patient” reports from the patient-focused meeting on chronic fatigue syndrome (CFS, also known as ME/CFS) in April 2013: http://www.fda.gov/downloads/ForIndustry/UserFees/PrescriptionDrugUserFee/UCM368806.pdf